Research

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Information for Researchers

The CHDS collaborates with outside scientists interested in using CHDS data files. All researchers using the data files are required to sign a Confidential Data Disclosure Agreement and are legally bound by that agreement to protect the confidentiality of the data.

For more information about how the CHDS protects the confidentiality of data, please see CHDS Confidentiality.

  1. Can outside researchers use the data in CHDS for biomedical research?

    Yes. We have developed statistical files that can be used to answer important research questions. These files do not have any information that can be used to identify individual participants in the CHD studies. A summary of data items available in these statistical files can be found here. Manuals and data are available from the CHDS (see below).

    There are opportunities for professors, researchers, and PhD students to use the CHDS data to teach or for analysis of approved research questions.

  2. How can I get a copy of the statistical files/manuals?

    For detailed instructions on how to obtain CHDS data files for research purposes, please contact or and request the appropriate protocol:

    • If you are a researcher interested in using the CHDS data please request the CHDS Data Use Protocol.
    • If you are a professor interested in using the CHDS data for teaching please request the CHDS Teaching Data Use Protocol
    • If you are graduate student interested in using the CHDS data for your thesis or dissertation, please request the Student Use Protocol.

    Please be advised that all applications will require review and approval by CHDS staff so be sure to submit requests with adequate time for staff to review you proposal.

  3. How may I do a study that involves contacting CHDS participants or uses archived blood samples?

    The CHDS has a policy in place to strictly protect the confidentiality of participants (see CHDS Confidentiality). In addition it is our policy to restrict the use of the serum archive to studies of high scientific importance that cannot be done otherwise and to coordinate the efforts of scientists working in similar areas. If you wish to propose a new study that would require contacting CHDS subjects or would use CHDS serum, you will need to review the CHDS Protocol for New Data Collections and/or CHDS Serum Archive Protocol and contact at CHDS to initiate an approval process. This process involves a pre-proposal that must be approved, and compliance with CHDS policies.

    To request either of these protocols, please contact or . Please be advised that CHDS requires time to evaluate proposals and cannot accept last-minute requests.

Overview of CHDS Data Files